Sunday, July 14, 2013

Patience is a virtue

This post has been sitting in microsoft word waiting for the right time to post -

As some as you know, I decided about a month ago that obtaining a Master's in Psychology was not really where I wanted to go... Don't get me wrong I love love love psychology and always will, however as the time came for Taylor to have her first Summer Break, I knew that I had to make a decision... Spend the whole summer stressing over every term paper and final exam or spend it with my two beautiful daughters getting lost at the beach and in the sun. I prayed hard about this decision - as I really was torn, I am career and education driven... often I have joked if I could make school a career I would. As the session came to a close for the spring, I was faced with a challenge that was greater than I could have ever imagined, Taylor's eye surgery... Seemed simple in my own head - I thought shoot surgery,  the next week she would be jumping and playing and talking like normal... I was wrong - VERY wrong.

I quickly emailed my advisor and set up a meeting with him... Deciding to drop out of a master's program with a scholarship at stake was no easy task... I do want everyone to know, it was the RIGHT decision... Taylor and Addyson are only young once, as much as I would like to think that they would look back and be proud of me for accomplishing my Master's degree - I didn't want that to be the only thing that they remembered... Oh, we couldn't go to the park because mommy had to write a paper... etc.

I do not know where my education or career future is and that is perfectly okay - I feel that at this time, God has called me to be a mother and a wife. I plan on finding a job, but the more I look into daycare and gas prices the more I realize that it really is not financially possible to do at this time...and that is okay.

I write this blog for one of two reasons, one to keep everyone updated and the second reason so we might have some sort of record of what was going on that particular day/month/year.

As a few ( very few) of you know, recently I met a new friend - her daughter has Mitochondrial Disease... When I explained to her what was going on with Taylor, she informed me that it sounded like Mito... I admit when she told me this - I had absolutely NO idea what it was nor how a child gets such a disease. As soon as I got home the researching started... Family and Friends, Taylor fits the symptoms almost perfectly, it is scary. We have an appointment in March of next year ( i know forever a way..) to discuss everything with a developmental pediatrician who also agrees with our suspicions.Taylor has always tired easily, always had issues regulating her temperature especially in the summer... i am sad to say I thought it was normal. I thought we crammed too many therapies on her and she was just "tired." Taylor has many vitamin deficiencies which is a key symptom in Mito. At this time, Nick and I ask that you pray with us and for us, for Taylor that we get this figured out sooner rather than later.

Nick is returning to school to finish his Associates. Taylor goes back to school August 19th and Addyson and I will keep chugging along.

Love to all of you!
Janine